Rare Patient Voice

Rare Patient Voice is built on the core values of being a good resource for our patients, a good partner to our clients, a good employer for our staff, and a good citizen in our community. We are always listening to three key voices — our patients, clients and employees. The company models these values

Rare Disease 360

Rare Disease 360™ is part of the International Healthcare Media (IHM) Family of Media Brands. IHM is a global communications media company that engages healthcare professionals, patients and patient advocates through live events, print brands, websites, videos/podcasts, and proprietary digital media assets. IHM helps clinicians deliver quality care, improve patient outcomes and satisfaction, and optimize


Altum is a software company driven towards the advancement of research. Our online grants management software solution is designed to empower funders, connect the research community, and extend the impact of grant-making long beyond the award.

Tanner Pharma Group

We deliver solutions for organizations in the global healthcare network, removing barriers and implementing programs so they can: Provide access to medicines for patients in need Demonstrate the value of new medications Enable better health

Johns Hopkins Medicine

The mission of Johns Hopkins Medicine is to improve the health of the community and the world by setting the standard of excellence in medical education, research and clinical care. Diverse and inclusive, Johns Hopkins Medicine: Educates medical students, scientists, health care professionals and the public Conducts biomedical research Provides patient-centered medicine to prevent, diagnose

Childrens Hospital of Philadelphia

At our Division of Gastroenterology, Hepatology and Nutrition (GI), your child will receive comprehensive, high-quality care from a team of experts who practice family-centered care: That means your family will always be included in discussions related to your child’s diagnosis, treatment plan and progress.

Stanford Childrens Health

Whether your child has simple or complex digestive, liver, or nutrition needs, our large team of pediatric specialists and subspecialists and our specialty programs are here to offer you solutions. Our comprehensive, multidisciplinary whole-child approach ensures that every aspect of your child’s condition is fully addressed. By surrounding your child with the brightest, most innovative

Sanford Research

Sanford Research is a premier biomedical research in the Midwest. We conduct research to innovate healthcare through cutting edge science. We: – Support biomedical research across the research continuum – Have a diverse range of research interests – Cultivate future scientific innovators and promote community education Our researchers are working to build the foundation for