Vertex Hold
Viatris Inc.
Viatris Inc. is a global healthcare company empowering people worldwide to live healthier at every stage of life. We provide access to medicines, advance sustainable operations, develop innovative solutions and leverage our collective expertise to connect more people to more products and services through our one-of-a-kind Global Healthcare Gateway®. Our portfolio comprises more than 1,400
Cystic Fibrosis Research Institute (CFRI)
Cystic Fibrosis Research Institute (CFRI) is a nonprofit charitable organization that funds innovative cystic fibrosis (CF) research and offers education, advocacy and psychosocial support and wellness programs to those with CF, as well as their families and caregivers. Founded in 1975, It is our mission and vision to be a global resource for the cystic
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Vertex
Jacks Corner
Jack’s Corner is a nonprofit organization dedicated to improving the quality of life and finding a cure for children with SPG50 through the acceleration of gene therapy treatments, funding of research, and raising awareness of the disease. SPG50 is an ultra-rare neurodegenerative disease that affects children. The disease causes spasticity that starts in children\\\\\\\’s legs,
The Dash Alliance
BUILD For the 1 in every 10 people affected by a rare disease, there is a community of their friends and family who are also impacted. At The Dash Alliance, we build collaborative relationships with rare disease stakeholders to identify needs and develop impactful solutions. CONNECT We make it possible for stakeholders across the globe
The Fred Files
Created by Cambria Lord in 2020, The Fred Project is a rare disease outreach campaign designed to raise awareness for rare diseases while creating opportunities for kids and their families to share their rare stories. Sign up for a virtual Fred visit or have Fred visit travel to you home via the postal service for
Cumulus
Cumulus
Rare Revolution Magazine
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