My name is Kevin Bird. My son, Luke, was born with a rare disease called Alagille syndrome. At just 11 months old Luke had a life-saving liver transplant. I have seen my son endure so much in his 5 short years, and as a dad that has been difficult. I am passionate about educating people on rare diseases and Alagille syndrome and will continue to fight for my son and others like him.

Instagram: @kevinmbird


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