Patty Weltin is the CEO and Founder of the Beyond the Diagnosis.  She is the mother of two children with Ehlers-Danlos Syndrome, a rare disease.  Patty began working in this space by creating a new business model of working by state. She is from Rhode Island.  Her award winning work in state-level advocacy grew to national advocacy efforts. Today, Patty proudly works to successfully use art as a powerful tool to create awareness and innovation into orphan and neglected diseases.