Geoff is the digital editor at RARE Revolution Magazine, an independent, not-for-profit publication dedicated to elevating the voice of the rare disease community. Geoff worked in the education sector for 20 years, teaching in schools in the UK and overseas. He served as an examiner and co-authored a school textbook on English literature. Now, as
Richard Duncan is the Executive Director of the Universal Design Institute and the Better Living Design Institute in Asheville, North Carolina. Richard is a Planner who has spent over 35 years in the field of architectural and product accessibility and universal design in residential, public, and transportation environments as well as community design for constituencies
Patty Weltin is the CEO and Founder of the Beyond the Diagnosis. She is the mother of two children with Ehlers-Danlos Syndrome, a rare disease. Patty began working in this space by creating a new business model of working by state. She is from Rhode Island. Her award winning work in state-level advocacy grew to national advocacy efforts.