Jack’s Corner is a nonprofit organization dedicated to improving the quality of life and finding a cure for children with SPG50 through the acceleration of gene therapy treatments, funding of research, and raising awareness of the disease. SPG50 is an ultra-rare neurodegenerative disease that affects children. The disease causes spasticity that starts in children\\\\\\\’s legs,
Rare Patient Voice
Rare Patient Voice is built on the core values of being a good resource for our patients, a good partner to our clients, a good employer for our staff, and a good citizen in our community. We are always listening to three key voices — our patients, clients and employees. The company models these values
PFIC
Our vision is to inspire hope in the PFIC community. Our mission is to improve the lives of patients and families worldwide affected by Progressive Familial Intrahepatic Cholestasis, PFIC. We value connection, education, and support to empower the community. We value providing relevant information for informed decision making, inclusivity, science and research, and collaboration. We