The Fred Files

Created by Cambria Lord in 2020, The Fred Project is a rare disease outreach campaign designed to raise awareness for rare diseases while creating opportunities for kids and their families to share their rare stories. Sign up for a virtual Fred visit or have Fred visit travel to you home via the postal service for

The Striped Spot – A Safe Online Community for Rare Kids

The Striped Spot is the only online community designed to be a safe space for rare disease kids. Parents must have an account before they can sign their child up and no adults are allowed in the professionally moderated kid-safe spaces. Join us for monthly support groups for patients and siblings or pop in to